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Kawasaki |
The Kawasaki Families' Network was formed in April 1996 with the establishment of its Web site and the subsequent publication of its first newsletter.
It was started in Kaneohe, Hawaii, by Vicki Machado, joined by her husband Dale and their daughter Juliette, who was diagnosed with Kawasaki Syndrome in January 1996.
Membership is now around 300, with most on its mailing list residents of the United States but a large contingent from Canada and a few from Europe and Asia. Most are linked primarily by a quarterly newsletter. We exchange a lot of e-mail, too, as well as printed information about the disease from credible sources.
Other organizations were already established elsewhere in the world. The Kawasaki Syndrome Support Group is based in the United Kingdom. You can reach the U.K. group by writing to: Sue Davidson, 13 Norwood Grove, Potters Green, Coventry CV2 2FR U.K. Japan also has a parents' organization: Parents Association of Kawasaki Disease (Kawasaki Byo no Kodomo wo Motsu Oya no Kai). They can be reached c/o Mr. Mitsuru Asai, Minami-ikuta 6-34-16, Tama-ku, Kawasaki-city, Kanagawa, 214 Japan (fax: 81-044-977-8451). Most recently, the Kawasaki Foundation of Canada has organized. Contact: Kevin and Rainee Mayo.
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Send comments to: kawasaki@compuserve.com We'd love to hear from you. Let us know if it is OK to list you on our "Families" page.
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